December 26, 2010

DOWN BUT NEVER OUT

How fitting that my last post, some 6 months ago, was titled On Hiatus.  It must have been my subconscious writing that day as I really did have no immediate plans to abandon my blog.  Apologies aside, I'm back.  Now let me catch you up to speed...

Basically, I was feeling like real crap.  Crap with a capital C.  The kind of crap that you just can't put your finger on so you ignore it, chalk it up to getting older and trudge forward dragging one foot at a time.  I knew something was off but I just couldn't quite pin it down.  Was it Joe?  Was it the kids?  Was it work?  Was it CF? Was it the house?  The dog?  The yard?  The bills?  Uhm, no dumbass it's YOU!

Once I made that startling revelation, I grabbed the phone and made an appointment for a complete physical, something I had neglected to do since turning into a human incubator for the past 5 years.  While on hold with the receptionist it dawned on me that I had serviced my car more frequently than I had my own body.  The girl who had once been so responsible about getting a yearly physical, had taken a hiatus on her own health, servicing only her vagina for those nasty postpartum checks once every eleven months.  Vagina be damned.  Enough was enough.

As I drove to my appointment the following week, I was nervous - sweaty palms kind of nervous.  I knew that the scale was not going to be kind and the doctor even less.  Let's face it, 4 pregnancies in less than 5 years does not a Sports Illustrated swimsuit model make.  I thought back to the old me - the me who had taken up running 8 to 10 miles a day 'for fun'...what had happened to that girl?  I was trapped inside a body that wasn't mine and absolutely everything ached.  Doing the math, it was not hard to understand why either.  Since Charlie's birth nearly 5 years ago, I had put on 160 pounds yet had only managed to shed half as much.  By the time Henry was born I looked like Jabba the Hut, tipping the scales at 239 pounds.  Everyone kept feeding my ego about the pregnacy glow - yeah, it was a glow alright...a red hot mess of a glow.  

Dr. K walked in, asked how I was doing and I burst out in tears. 

"Not, good..."  I snorted.  "Not good at all."  Between sobs I told her how tired, how depressed, how frustrated, how completely spent I was.  I told her about how stressed out I was about cystic fibrosis and how I felt like I was always waiting for the roof to cave in, the other shoe to drop...basically, for the shit to hit the fan.  I had practiced on the drive in to work the converstation of me being completely open and honest with my doctor.  And for the first time in my adult life, I was.  If she was gonna bill my insurance for this visit, she was gonna earn every penny of it, dammit.  No more feigning Mrs. Good Patient.  I was coming clean.

I'm not one to break apart so easily - at least I like to think so.  Evidently, though this is not the case.  It was kind of like a breach in a dam; once the leak was sprung, everything came spilling out.  She listened, I bawled.  She listened some more, I ranted.  A little blood work, some urine and a few tissues for the road and I was done.  As we say in Spain, pis pas no más.  I was out the door.

Life went back to normal - whatever that means and I waited for her call that labs were back and it was time to consider Prozac.  Instead, I got a personal invitation to come back in to go over the results.  I had a sinking feeling wash over me.  Breast cancer?  A brain tumor?  Schizophrenia?  I was a mess.

"Well, we have your labs.  Quite interesting really..."

Great, I thought.  I'm dead.

"Remember how upset you were at the last visit?  How you complained of being so tired, so depressed?"

My throat, dry a as a bone, I barely managed a "Mmmhmmm..."

"Well, I checked your thyroid.  Kelly, a normal functioning thyroid will score in the range of 3 to 4; high being in the teens."

Oh God.  It's over.  I have cancer. 

"Your thyroid came in at 136.  It's the highest score I've ever seen in more than 15 years of practice."
GASP.

"It explains everything, Kelly.  This is why you have been feeling so down.  Your thyroid has been underperforming and so your pituitary gland has been dumping excess hormone levels into it in hopes of kick starting it.  But what's happening is that it's flooding your system, causing you to be overly tired, lethargic and yes, even depressed."

Screwed yet again by bad genetics.  Dammit.

"I'm putting you on a thyroid medication, and a daily dose of vitamin B.  We'll follow up in six weeks to reassess and if need be, tweak the dosage."

That's it?  No chemo?  "Uh, okay."

That was in how my conversation ended with Dr. K on August 17th.  Now, 4 months and over 150 miles later, I can say, erh...I can shout,  "I'M BACK.  THIS BITCH IS BACK!"

At last appointment, my thyroid, cholesterol, and weight were all within normal range and I feel like ME again.  Is it the meds?  Well yeah, they definitely helped to get things under control but I don't attribute everything to them.  I've been working out daily and working out hard core, like I used to.  The treadmill that once mocked me, now winces when it sees me coming.  The .8 of a mile that nearly brought me to my knees is now a cool 10 mile run, balls to the wall as I like to say, with NO pit stops.  I hear Ronnie Sharpe pushing me with "...you can do anything for just one more minute, can't you?"  I hear CysticGal pounding that treadmill and baptizing those new lungs of hers as HERS.  I hear Maylie's fit of giggles as she jumps higher and higher on that trampoline out back. I hear Charlie coach Lola to "take a big breath, hold it as long as you can and let's see who can stay under longer."  And the mommy guilt that once was no longer is.  I decided that in order for me to be a good (insert noun), I have to lead by example.  How can I ask my kids to adhere to an hour or more daily health regimen if I myself can't even maintain one?  If I want Charlie, Lola and Henry to love the feeling of a good workout then it's my responsibility to show them; not just talk the talk but walk the walk.  I traded my 5AM drive into school to work on lesson plans that may or may not get rave reviews for a 5AM drive to the YMCA.  I kept "21 days to make a habit" as my mantra knowing that if I could stick with it long enough, it would be a need not a just a seemingly intangible want.  I tuned out the excuses and plugged in to those who were leading by example; mainly my friends on CysticLife

Then, almost by dare, I took it up a notch.  I signed up for my official comeback.  March 20, 2010 I will be running my first half marathon since gosh, I can't even remember how long its been.  Of course I'm running for my cause, CF.  One of the many rock stars of the CF community, Emily Schaller, has organized a virtual race, Out Run CF.  The concept is so genius - sign up to run, pay your twenty bucks (all of which goes to the Cystic Fibrosis Foundation), pick your distance, then no matter where you are on 3/20/11, RUN IT. 

I am running to raise funds and awareness for cystic fibrosis.  I am running because I have two strong legs, two great lungs and two awesome kids who are chasing good health.  I am running because I want to show my kids, all three of them,  that comebacks are the norm not the exception.    I am running because I can.
I am running for me. 

And I invite you, my long lost friends, to do the same. 

RUN.  WITH.  ME.

July 25, 2010

ON HIATUS

It never fails.  Whenever I get to a certain point in mowing the yard, my brain kicks into automatic pilot, my to-do list that I've been mentally checking off all morning self destructs and I'm on temporary hiatus from the chaos that is life.  This same phenomenon, though perhaps to a slightly lesser degree, used to happen to me back when I could call myself a runner-10 miles here, 6 to 8 there...but let's face it, a husband, three kids and a dog later, those running shoes have seen little action lately. 

So there I am today, following the power lawn mower back and forth across the front yard wondering how badly the tan lines from my nursing bra are going to look if I can ever get into normal clothes again and I pass the lightning stunted climbing tree that would usually have 4-6 kids hanging out of it save for the fact that Charlie and Lola have been at Grandma's for the past day and a half, the neighbor kids are pissed and now boycotting our front yard.  Anyway, as I pass the tree I squeeze the handle of the mower a little too tightly and feel the power surge and it dawns on me that in doing so I have probably just used up more gas than necessary.  And like that my mind takes off like a stallion out of the gates at Churchill Downs and I can barely keep up...


How much gas does this mower hold in it's tank?
More than a gallon?  Less than a gallon?
Lemme think now -  I can fit 3 gallons comfortably in our side by side fridge, provided they're the Costco kind.
How many gallons did they say BP spilled into the Gulf of Mexico?
Didn't Anderson Cooper report some 1.5-2.5 million gallons since mid April?
MILLION?
No.  Impossible.  Well, if it IS in the millions we're screwed.  
And why do they keep calling it a spill?  Isn't a 'spill' more like a one time event?
You know, like,  "Hey Charlie, careful now, that's a big-boy cup.  No lid on that one, Buddy.  Try not to spill."
All that oil from the live feed camera just above CNN's ticker was coming out full force.  That was no 'spill' in fact, it looked more like a massive hemorrhage to me.
How do you spell hemorrhage anyway?  One h?  Two?  I think there's two.
So if BP drilled into the floor of the ocean to hit oil, the pipe then broke....um, yeah, this is some some serious shit.
How many gallons came out again?
Per day?
Per hour?
Total?
How big is the Gulf of Mexico anyway?
And now there are reports of oil coming ashore and settling to the sandy bottom of the sea floor.
How is THAT going to effect all those bottom feeder fish?
Will I ever be able to eat a jumbo Gulf shrimp again without needing a follow-up medical exam?
Won't the birds that survive get sick from eating contaminated fish?
Are the birds that have been rescued smart enough not to fly back into all that crap again?
Geez, how can they miss it?  It's everywhere.
Oh crap, there goes the food chain.
Wait a second, didn't they say in high school earth science class that water evaporates off of the big bodies of water, goes up into the atmosphere and then comes down again? 
What exactly was it about that water cycle thing again?
I gotta look that up.
So my toilet overflows.  Shit is going everywhere.  I'm not gonna whip out the Clorox and start mopping the floor.  NoSireeJimBob-a-Rooney.  I'm gonna turn the danged thing off. 
Yeah, common sense says to TURN.IT.OFF!
What were they thinking?
Plug the damned thing.
Now.
And hey, Mexico.  You too Central America, Cuba, and while we're at it, South America - newsflash:  it's your water too!
Can't that Gulf stream spin that crap down around the tip of Florida and whip it up the Eastern Seaboard?
Well, helllllllooooo Europe!
Come on, world.  Get off your butts and react to this. 
It's a stinkin' mess!!
HELP!
How many platforms are out there anyway?
Who's regulating them?
Hell, what good is regulating them when your drilling into the bowels of Mother Earth? 
Jesus.  This is insane.
Where did we buy the gas for this mower?
Did it come from a BP station?
Note to self, gotta boycott BP.
Nope.  Not gonna double cut the lawn today. 
Maybe I should stop mowing altogether.
Wouldn't the neighbors just love that? 
Better yet, I should get Joe to do his ridiculous crab grass removal strategy which involves matches and a bit of pyromania on the entire front yard and not just the bad spots
No, wait!  We could burn a message into the front yard so that all of the NW flights that fly over our house can look down and see in giant letters


F     U     B    P


Yeah.  That's it.

Hang on, sister.  There's more to it than just oil...
It's deforestation.
It's lack of recycling.
It's global warming. 
It's lack of potable water.  95% of the world’s cities still dump raw sewage into their water supplies.  Really?  Come on, people.
It's food safety and chemical contamination.  Genetically modified crops, food tainted with salmonella and E.coli bacteria, milk and other food containing hormones or antibiotics, baby formula laced with perchlorate (a chemical used in rocket fuel and explosives)...
No wonder our insurance rates keep climbing.
It's pandemics and superbugs.  Swine flu.  Avian flu.  Resistance to antibiotics.  70% of which are fed to healthy pigs, poultry and cattle, and end up in our food and water supply.

How's THAT?
It's nuclear energy.
It's...it's...it's...enough already. 
Screw the yard.
I'm going back to running.
My butt and thighs will thank me.
My unbalanced postpartum hormone levels are too unstable for this shit, that's for sure.
Oh yeah, and one last thing.

F     U     B     P
 

June 12, 2010

Viva Espana

For your information, I was the geek who sat front row center of your high school Spanish class. The one who had not just her hand but her entire arm straight up in the air after Senora's every question.  For those old enough to remember Mr. Kotter, I was the Horshack and the class was AP Spanish.  On any given day you could walk by the room, peer in and see me leaning so far over in my desk chair that it teetered on the brink of tipping over, my fingers straining skyward with an added frantic wiggle at the tips to alert Senora that I knew the conditional tense of ser and could use it in a sentence.  I annoyed my classmates to no end as I parroted the accents coached by my teachers,  "Carmen estaaaaah en el baño.  Me guuustaaah la sopa pero no puedo comer maaaaahs."  By the time I was a Senior my family had sponsored four different foreign exchange students, I was stealing the monthly copies of Hola magazine from our local public library and I had convinced myself that Prince Juan Carlos and I had a future together.  Good times alright...good times.


Although things didn't work out for good ole' PJC and me, I did manage to land myself a Spaniard.  Joaquin Jose Geist aka Joe, Joey, El Americano...he's all mine.  And together we have three kids, a dog, two cars, a clubhouse out back and a tree swing out front.  Life is pretty good, I must admit.  Yet we are cashing it all in.  Not for more but rather for it.  A chance at our wildest dream come true: a permanent move to Spain. 

The question inevitably comes up: Are you guys really moving to Spain? But why? Why Spain? Even my Spanish friends ask me this. And I'm left there scratching my head, trying to sum it all up in a sentence or two before the moment passes. Usually I just smile uncomfortably, shrug and give a lame, "Well, we just love it there," which is true but it's actually a lot more complicated than that. At least I'd like to think so. So I think I'll take a detour from my rant on cystic fibrosis and concentrate on putting this question to bed once and for all.  Here's the because in no particular order...

  1. PLEASE PASS THE SOCIALIZED MEDICINE
During the work week I see my children for less than three hours a day; 30 minutes of which they are strapped in to their Vests and doing treatment.  Talk about a captive audience.  I realize that some of this is my own doing since I leave for school when it's still dark out and am almost always the first teacher to arrive in the building.  I'm a morning person and I use the quiet that is an empty school building to my advantage...whether it's grading papers or lesson planning...all in the name of keeping work at work and not cutting into my family time at home.  I usually get home, barring any after school meetings, around 4pm.  This leaves me slightly more than 3, sometimes closer to 4 hours to reconnect over dinner, bath time, and treatment.  In spite of having summers, Thanksgiving, Christmas and Spring Break off, I've managed to miss most of my children's major milestones:  first steps, first words, first self inflicted haircut...I spend more time with other peoples children than I do my own and THAT really bothers me.

I'm the first to admit to being a working mom by necessity, not by choice.  I work because without my job we would have no health insurance, dental insurance, or life insurance.  I tried to go half time following Lola's birth and it killed us financially.  The cost of health insurance for our family devoured 85% of my meager paycheck that year.  It was shocking, to say the least.  Though the perks of my husband's self employed status are many, it is stressful to feel the weight of your family's medical well being upon your shoulders.  So many times I have shuddered at the thought of the current layoffs at school hitting us. Losing my benefits would be like losing a major limb.  I don't know if we would survive it.  And so I continue to work full time...not for bread and butter but for the safety net that is insurance.

Enter socialized medicine Spain is a democratic monarchy.  And in Spain, everyone is entitled to health care.  Free health care, that is.  Are there long lines for waiting?  Yep.  That is, if you're going in for a tummy tuck or a twisted ankle.  But for the major stuff, you will be just fine.  You won't die from waiting in line in the E.R. if you're having a heart attack.  You won't have to wait your turn to give birth either.  And best of all, chronic conditions, such as CF, are treated as priority.  CF patients are seen at accredited care centers routinely every two months.  This is actually more often than the kids are seen here in the States.   Also, because there is no FDA to contend with, Europe is seeing some pretty quick turnarounds for agressive drug therapies aimed at cystic fibrosis.  While the kids do not (yet) have a health regimen that includes any of the hard core drugs, we would like to be positioned to receive them if the need arises.  Remember your last trip to the pharmacy?  How much did you end up paying?  Was your copay enough to handle it?  Some of my CF mama friends are spending more than $10,000 a year on drugs to keep their kids up to snuff.  One gal pal met her full year's deductible at her first pick up at the pharmacy for that plan year.  What gives?  Why so expensive?  Is the mass marketing by pharmaceutical companies really improving the quality of meds by that much?  I think not.  In Spain, it is illegal for pharmaceutical companies to advertise. You enter a pharmacy over there and you won't find hourly employees peddling chips and salsa, Hallmark greeting cards or nail polish in 65 different colors.  What you will find is a pharmacist and drugs.  That's it.   The Spanish government subsidizes prescription medicine by 75% and negotiates a cap on what pharmaceutical companies can charge.  The consumer reaps the benefit by only having to come out of pocket for 25% of the cost of the drug.  And of course, once you put something in a plain white box and "market" it with it's scientific name, you just saved about 300%. 

Finally, and arguably just as important, is that a move to Spain will afford me something that I've been aching to do for the last 4 years:  retire.  I have sacrificed a major portion of the past four years, chained to a job so that we would have good healthcare for our family. As we head to Spain, we do so knowing that we will be afforded the aforementioned benefits because my husband is a Spanish citizen and heath care for citizens and their immediate family is much more than just a come hither perk.  It is a right.  I'll be able to stay at home with the kids and Joe will finally be able to get back to his travel schedule and grow his business to where it should be instead of changing diapers and thawing out breast milk while simultaneously taking client calls for more tile.   Aaah, the beauty of Internet commerce in all of its glory.   

2.  BILINGUALISM OR BUST

My husband was born and raised much of his life in Spain. His father, an American pilot for TWA, spoke to him exclusively in English.  His mother, a flamboyant, dark-haired gypsy from Andalucia, raised him speaking purely Spanish.  It was a strange mix, those two made.  Nearly a dozen years later and I still have vivid memories of that first Thanksgiving with my future in laws.  Neither his mother nor his father were fluent in their second language  - can you imagine?  "Please pass the pavo, amor."  "A toast to our invitada, chin-chin!" Dinner was a smorgasbord of Spanglish and to this day I still don't know how those two managed to stay married as long as they did.  Maybe their success lied in the fact that they often did NOT understand one another.  Whatever the case may have been, it worked.  And they had the bilingual offspring to prove it. 

Joe, my husband, is a rare example of a perfectly balanced bilingual.  The linguistic gift given him by his parents is simply incomprehensible.  He can small-talk, argue, inform, debate, convince, convict and pray just as easily in Spanish as he can in English.  He turns on the Spanish as fast as you or I would flip on a light switch.  It never ceases to amaze me and yes, I'm very, very jealous of it.  To speak two languages at a level equivalent to that of a native speaker is rare, very, very rare. 

With the birth of our firstborn, the plan was for Joe to handle the Spanish and I the English.  Fairly straightforward, this approach would ensure that our little guy got off to a rock solid bilingual start.  The United Nations convened in our living room and so began the journey towards bilingualism.  I posted conversation topics on the kitchen calendar so that I could be sure to chat about the same daily stuff in English;  what he did, what he saw, what he ate, colors, numbers, younameit...we even insisted that the pulmonologist, a Latino, speak Spanish during our CF clinic visits.  Believe me, all bases were more than covered.  But there was one problem.  At every turn, Charlie responded appropriately in English.  In short, he refused to speak Spanish.  I hypothesize that our son was astute enough to realize that Spanish was the minority language between his parents.  Second fiddle, second class, not up to snuff...we failed in terms of modeling its use between ourselves.  Somehow, some way, Charlie decided that if Mamá and Papá weren't gonna step to the plate to speak it that neither was he.  And so a civil war of sorts began right at the kitchen bar stools and continues to wage on some four years later.  A typical passive/aggressive battle sounds like this:

Joe Oye, nen.  ¿Qué te apetece para desayunar hoy?
CharlieUhm.  I dunno.  How about pancakes!?
Joe:  No, no quedan.  ¿Qué tal si te hago una tortilla francesa de jamon y queso?
Charlie:  No.  I want pancakes.  Omelettes are gross.
JoePues pancakes no hay.  A ver si te puedo poner unas Galletas Maria con un vaso de leche manchada.  Y si te lo comes todo, un pan tostado con mantequilla y azucar.
Charlie:  Okay, but only if you put extra sugar sprinkles on the toast.

If it weren't so darned frustrating, it would be laughable.  The fact that our son understands absolutely everything but refuses to articulate anything is maddening.  Ask him a question and he'll answer it...in English.  Talk about him and he'll correct you...in English.  It's enough to drive you to drink, that's for sure.


Enter Spain.  Try as we have to get the bilingual thing to happen in our household, it just hasn't taken root.  Neither one of us feels comfortable waiting out the next 8 years until the public school system will offer mediocre Spanish classes from a gringo teacher who spent a semester abroad during college some 25 years ago. We're jumping ship in the name of bilingualism.  Friends, cousins, aunties, uncles, school, TV, movies...it will ALL be in Spanish.  Charlie will have no choice but to speak it, breathe it, eat it, drink it... LIVE IT.  And who knows, maybe he'll be closer to us because of it, not in spite of it. 


3. AN EDUCATION FIT FOR THE BIRDS


Next year will mark my tenth year as an ESL teacher.  I don't normally like to discuss my views on education because more often than not, I end up offending someone.  So if you may be one of those people, now would be a good time to do a rapid scroll to number 4 or buckle up and hold on tight because you're in for a bumpy ride.


Basically, I don't want my kids going to school here in America.  While I have managed to remain union free, keep most of the gang related stuff out of my classroom and come up with some pretty fun lesson plans that capitalize on the technology that kids are using today, I have seen more than enough of my fair share of just plain bad teaching and that scares the hell out of me.  A school district that rewards teachers based on longevity is neither my idea of progressive nor rigorous, the two buzzwords we hear most often these days.  I know more teachers who whip out the same tired, coffee-stained lesson plans year after year than not.  I have met and worked with dozens of high school students who are promoted to the next grade level while still unable to read a fourth grade level narrative, sign their name in cursive, identify a verb in the present tense let alone write a complete sentence with one in it.  Yet these are the students who will graduate with the same diploma as the valedictorian of their high school class; the one who took four AP classes, worked two part time jobs, ran track and got a full ride to UC Berkley.  I have a HUGE problem with that.  HUGE.


It's different across the pond.  In Spanish schools, the stakes are high for everyone, not just the GT kids.  And the students know it.  Following each grade level is a final exam.  Pass the test and you are promoted.  Fail the test and you don't move on with your peers.  Period.  There is a universal curriculum approved of and enforced by the Spanish Ministry of Education.  Ninth grade in Spain is the same across the board, whether you're in Badajoz or Barcelona.  You can expect not one but at least two foreign languages because English class is a given.  The second one is up to you to decide upon.  An End of the School Year Field Trip is to see the Strait at Gibraltar or the Guggenheim in Bilbao, not a free for all at Adventureland or the zoo.  Selectivity exams are held to see not only if you qualify to get into college but if you are fit to study your career choice.  It's tough.  It's stressful.  It's selective.  And I'm okay with that.


4.  BLOOD IS THICKER THAN WATER


Ask and my husband will say that his fondest memories of growing up in Spain are his summers on the Alicantine beach, sailing up and down the coastline on his catamaran~cruising for hot swedish chicks, I'm sure.  He's recounted the same nautical adventures dozens of times and though the stories are entertaining, his face does not light up quite the same way as it does when he talks about the antics of his Titos.  I often wonder if he realizes the impact that growing up surrounded by such close family had on his development.  I really do wonder...


It's different here. 


The nearest cousins we have for Charlie, Lola and Henry are over 1,400 miles away and we see them once a year, if we're lucky.  To our Spanish family, the distance is the equivalent to a long haul over to Siberia.  They cannot fathom being that far removed from family.  In a country where you often find yourself in the same classroom as your cousin Eduardo, and you can stop at an auntie's house for a merienda on the way home from school, American distances are just plain inexplicable.  To be fair, we do have one grandparent in town, my mom.  She's close with the kids but we don't see her nearly as often as one would assume in fact a once a week or every other week visit is a lot and that's just not right in my book...especially when ours are the only grandkids she has.  

We've been shuttling back and forth across the pond for almost ten years now. Our relationship with Joe's cousins remains tight.  I can't think of one of his cousins who doesn't have at least one child close to the same age as our own children and the same can be said for his childhood buddies, many of whom still live within a stone's throw of his childhood home.  It's exciting to think of the memories yet to be made amongst this brood.  The sooner we can get over there and set up house, the better in my book.  I hate to think of yet another Christmas to go by where our children will not be visited by the three wisemen (Titos?) on Epiphany or pelting Papa Noel (Joe?) with oranges as he makes a surprise guest appearance on Christmas Eve.

This past Easter was bittersweet for us.  As we watched the kids open their Easter baskets, I cringed as the giant chocolate bunny uncloaked himself.  Later that evening, Joe and I would sit amidst the glow of the internet and watch the Easter processions through the candlelit cobblestone streets of Spain.  Entire towns were gathered at the main plaza to pay tribute to the Virgin Mary and of course Jesus Christ.  I thought about how I had robbed my children of this experience by not being there already.  Here I am, in middle America, going to the Mall, running everywhere at a million miles an hour in my car, yet seeing and doing nothing.  How many days do I feel like that hamster running to nowhere on her wheel and then doing it all again the next day?  Maybe a move to Spain will not be any different, but I'm willing to at least give it a shot, that's for sure.

5. HOME SWEET HOME 

For as long as I can remember, Spain has felt like home.  We've been there so many, many times that I know the streets well, the vendors better and the best bets for speedy parking.  Hell, I even have my own hair dresser there.  For me, Spain is not a foreign country at all.  I am confident and comfortable there.  I don't feel like an outsider in the least, in fact I have felt lonelier and less a part of things on cross country visits right here in the States more than I've ever felt in Spain. 

Having lived abroad in Spain back in the early 90's, I fully expect that the honeymoon period that comes with expatriate life abroad will wane...especially as the demands of Joe's business grow and he is forced to travel more.  But I'm up for the adventure and have somewhat of an idea of what awaits me so I think it'll all work out...doesn't it always?  That, and this is just one of those moments in my life where if I don't follow through, I will forever regret it.  I don't want to live my life like that; looking back 5 or 10 years from now and wishing we had gone for it.  True to myself, we're jumping in head first, all at once...no such thing as testing the waters with the big toe...nope, we're locking hands and jumping in together...all five of us.

So while it may be true when they say that the grass is inevitably greener on the other side, this I already know.  Afterall, I am not so naive as to think that life in a foreign country will not come without its fair share of pitfalls but that my friends is an entirely different blog.

May 26, 2010

Kinked

Cystic Fibrosis.  Yeah, I can articulate the basics but when it comes down to the science of it all, I know just enough to be dangerous...very dangerous.  Lucky for me I have a husband who is really good at taking it all in, digesting it, and then spitting it back to me in laymen's terms which helps immensly when it comes to calming me down at the first sniffle of an oncoming cold or the whistling wheeze heard after a too long hug. It's ironic, really, that my husband the NON multitasker, the NON stress basket of the family, Mr. SoLaidBackYou'dBetterCheckMeForAPulse posesses such a skill.  Meanwhile I'm the one schlepping into Clinic with the checklist of questions written out as a laundry list of whatifs and ohbytheways a mile and a half long.

When you boil CF down to the nitty gritty, the bare bones...it's a disease of the cells.  There's a broken one in there.  Outta commission.  Out of Service.  On the fritz.  And man o man, does that jack things up!  Add to it those 1500+ genetic mutations of which you could get two - the whammies - and you'll give yourself a migraine for sure.  You see, it's just two genes - the gift or curse you get from your parents, on which everything rides.  Sick or not sick,  enzymes or no enzymes, lung transplant or not..the lottery that are those two genes can mean the difference bewteen CF or NO CF. 

My simple, unscientific mind - the one that sorts underwear by color and pants from fat to skinny has no patience for this disease.  We can put a man on the moon.  We can click enter and send a ten page document to Europe in less than a hearbeat.  We can sew a finger, a toe, a leg or an arm back on.  But we can't fix this?  Go on now, get in there, dig out that faulty gene and pop in a good one.  One that WORKS for Godsake.  Geesh!  This is why I'm not a scientist, I guess.  Screw The Scientific Method.  Just get to the answer already.  I mean Come On...

May 15th was our annual Great Strides Walk for a Cure.  Des Moines managed to pull in over $205,000 - it's most successful walk ever in spite of falling short of it's $225,000 goal.  I was pleased, yet miffed.  Okay, truth be known, yours truly had managed to work herself down to outright pissed by end of the day.  I was pissed that I was pissed...how is that even possible?  Well, for starters I was pissed about the fact that there were several family members who did not donate.  I'm talking CLOSE family members - people to whom I wouldn't think twice about giving a kidney or bone marrow.  Family members whose butts I once wiped.  Family members who call to chit chat on a weekly, sometimes daily basis.  They didn't even chip in a measly 4 quarters.  Come.  On.  Is the economy that bad?  Are they that out of touch?  My college roommates from nearly twenty years ago (20?!  Gulp.), the Facebook "friend" who's actually a complete and total stranger, my busy as a honey bee in June neighbor who I never talk to but see whizzing by in her SUV....they all donated. 

My attitude soured as I took a break from picking apart said family members and thought about the bigger picture.  Moolah.  Bucks.  Cash.  Benjamins.  Dough.  MONEY.  The catchy, Money Buys Science and Science Buys Life line that I pimped prewalk started to weigh heavily on me.  Des Moines had collected almost a quarter of a million dollars and there were how many other cities walking?  Houston, Tampa, Chicago, Seattle...millions upon millions were blowing around, whirling and swirling around and around all in the name of a cure.  Just how much money to you freakin' need to cure end this thing once and for all?  I've heard it takes a cool $800 million to get a new drug conceived, tested, approved and to market.  Are you kidding me?  Are we talking dollars or pesos?  EIGHT HUNDRED MILLION?!?!  For just ONE new drug?  What gives?  Are the cells charging a participation fee for each clinical trial?  Is the new company car for the scientists a Rolls Royce?  Is this whole beast just a conspiracy by the pharmaceutical companies so they can create more (profit making) drugs instead of a cure? Pop this gal a Vicodin quick before her head flips off!

The plane was in a huge nosedive, going down fast and I couldn't find the damned parachute.  Like always, I did what I normally do.  I yelled, no screamed, at my husband about the sink full of dirty coffee cups, slammed every door that I walked through, and then...then I splintered.

You see, I'm not a patient person.  No, not me.  Not at all.  I strum my fingers against the steering wheel, willing the car ahead to go just a little faster so I can make the light.  I open the microwave between 1 second remaining and zero just so I don't have to hear its annoying beep.  It's half impatience and half OCD.  But it's me.  So one would think I would know better than to cruise out to the CFF.ORG website post walk.  Like always, I lie to myself, telling myself that I'm going to look up walk results of friends and acquaintances.  But I'm coming clean - it's a lie.  It's always the same lie - a different excuse maybe but the same lie nonetheless.

Like a fool I'm a much too frequent visitor of http://www.cff.org/.  I'm a fool not because I visit so regularly but because I expect to see something other than the face of the middle aged physician who pledges, "I will keep working toward a cure."  Sorry Buckaroo, no can do.  Nope.  Not good enough.  Each and every time I see his face I let out a heavy sigh to give voice to my disappointment at the absence of what I have been waiting for since diagnosis: "We are Pleased to Announce That The Cure Has Been Found." How many times in fact have I seen that guy's face?  A hundred?  Five hundred?  A thousand?  I don't know.  The point is, it's still there.  His face.  His promise.  And I'm tired of waiting on promises.  I want a cure.  Did you hear me?  I WANT A CURE NOW. 

So pardon me if the apathy of a few has wet my feathers.  I know life is too short to wallow.  I just had to purge it.  I'm human afterall.  My feelings get hurt, I whine a little and then I move on, past all the bullshit and onto the next line item.

The kink in my line is fixed and I can go back to life as I know it...crayola on my leather couches, fundraising for a cure, dog hair on my kitchen floor, a husband who snores the whole night through, more fundraising, students who forget homework that was never done and don't let me forget, more fundraising for a cure...you know the drill. 

Oh, and by the way, thanks for the purge.